Parents’ Perspectives on The Quality of Life of Adolescents With Cerebral Palsy: Trajectory, Choices And Hope
Référence bibliographique 
Shikako-Thomas, Keiko, Bogossian, Aline, Lach, Lucyna M., Shevell, Michael et Majnemer, Annette. 2013. «Parents’ Perspectives on The Quality of Life of Adolescents With Cerebral Palsy: Trajectory, Choices And Hope ». Disability and Rehabilitation, vol. 35, no 25, p. 2113-2122.
Intentions : «The present study aims at understanding the parents’ perspectives of their adolescents’ QoL [quality of life] in order to expand on the insights gained from the adolescents. Specifically, we wanted to understand how parents of adolescents with CP [cerebral palsy] perceive their child’s QoL and what aspects relating to the child, the child’s environment, and the disability may contribute to their perception of their adolescent’s QoL.» (p. 2114)
Échantillon/Matériau : L’étude est basée sur la participation de 16 adolescents montréalais (12 garçons et 4 filles) atteints de paralysie cérébrale de 14 de leurs parents (12 mères, 1 belle-mère, 1 père).
Instruments : Guide d’entretien directif
Type de traitement des données : Analyse de contenu
«Parents of adolescents with CP who participated in this study constructed the QoL as a complex interaction of intrinsic and extrinsic aspects threaded by processes related to the trajectory of their child developing with a disability in the transition from childhood to adolescence and from adolescence to adulthood. These processes were seen as being framed by hope and choices. From the parents’ perspective, the interaction of these intervening factors along with contextual and adolescent-related aspects, composed the transitional experience of well-being for adolescents with CP. Adolescents’ and parents’ previous and current experiences and ability to foresee both subjectively and objectively the next steps to a happy life were considered essential for an overall sense of adolescent well-being.» (p. 2020)
Family Environment as the Social Context for Parenting Children with a Neurodevelopmental Disorder: a Descriptive Synthesis of the Literature
Référence bibliographique 
Bogossian, Aline. 2010. «Family Environment as the Social Context for Parenting Children with a Neurodevelopmental Disorder: a Descriptive Synthesis of the Literature». Mémoire de maîtrise, Montréal, Université McGill, École de service social.
Intentions : «This thesis represents a descriptive synthesis of observational studies measuring aspects of parenting and the family environment in families of children with neurodevelopmental disorders (NDD).» (p. 10)
Échantillon/Matériau : Données documentaires diverses
Instruments : «The Parenting Matters! systematic review literature search applied an electronic search strategy followed by a hand search of key journals to find eligible English and French language studies published between 1985 – 2008.» (p. 40)
Type de traitement des données : Réflexion critique
«This study partially achieved [its] aim by synthesizing a group of systematically selected studies through a conceptual coding system of family functioning and parenting variables. The exercise of grouping study findings by the newly defined conceptualizations of parenting and family had a few effects. First, it addressed the variability in the terminology and operationalized key concepts present in the measurement of parenting and family factors. Second, it allowed for a descriptive synthesis of the relationships that are important to consider when thinking about parenting in the context of families with children with NDD. Finally, it revealed the dated nature of research that specifically addresses the processes involved and nature of the relationships between family functioning and parenting children with NDD.» (p. 72)