Look Around Me: Environmental and Socio-Economic Factors Related to Community Participation for Children with Cerebral Palsy in Quebec
Référence bibliographique 
Zeidan, Jinan, Joseph, Lawrence, Camden, Chantal, Shevell, Michael, Oskoui, Maryam, Lamotte, Patricia et Shikako-Thomas, Keiko. 2021. «Look Around Me: Environmental and Socio-Economic Factors Related to Community Participation for Children with Cerebral Palsy in Quebec ». Physical & Occupational Therapy in Pediatrics, vol. 41, no 4, p. 429-446.
Intentions : «The objectives of this study were […] to identify existing resources available to children with CP [cerebral palsy] in the community, as reported by their municipalities and compare these data with parents’ experiences in finding and accessing existing resources, and […] to identify the relationship between neighborhood socio-economic factors and levels of participation in the community across different neighborhoods.» (p. 430)
Échantillon/Matériau : «Participants were recruited from the Quebec CP Registry. The registry is a confidential, nation-wide collection of medical and social information about children with cerebral palsy. Children are registered at the diagnosis of CP, and several variables are collected at different time points. Children with CP born since 1999 were enrolled within six of the 17 administrative health regions of Quebec.» (p. 431) «Participants in the stakeholder consultations included 25 key informant stakeholders, including parents of children and youth with disabilities, representatives of the provincial office for disabilities, leaders of community organizations promoting leisure participation, disability rights and accessibility organizations, rehabilitation professionals (physical and occupational therapists), educators (physical education teachers and special school educators), school principals, urban designers and childhood disability researchers and trainees.» (p. 431)
Instruments : - Guide d’entretien de groupe - Questionnaires
Type de traitement des données : Analyse de contenu Analyse statistique
The «results confirm that school-age children with CP have limited participation in the community. There are contextual factors closer to the family, such as lack of information about existing programs and supports, resourcefulness of parents to consult multiple sources of information and availability of family time, and finances that are associated with limited participation. However systemic factors such as social and material deprivation in the region where families live also limit participation opportunities, and that is the case regardless of children’s age and severity of disability. Indeed, most parents cited the lack of information as an important obstacle to their children’s participation in community and leisure activities, and only 18.6% of participants were aware about new resources or leisure programs offered by the community during the three last years, in spite of a large number of programs and policies reported by the municipalities to the provincial disability office.» (p. 441-442)
Progress and Gaps in Quebec’s Autism Policy: A Comprehensive Review and Thematic Analysis
Référence bibliographique 
Zeidan, Jinan, Shikako-Thomas, Keiko, Ehsan, Annahita, Maioni, Antonia et Elsabbagh, Mayada. 2019. «Progress and Gaps in Quebec’s Autism Policy: A Comprehensive Review and Thematic Analysis ». Qualitative Research, vol. 110, no 4, p. 485-496.
Intentions : This article aims «to identify policy processes supporting services for children with autism and possible gaps across existing policies, especially in view of the most recent plan.» (p. 487)
Échantillon/Matériau : The authors «conducted a comprehensive review of autism-related policies and guidelines issued by the government of Quebec between 2010 and 2018.» (p. 487)
Type de traitement des données : Réflexion critique
According to the analysis, «autism policies articulated at the provincial level in Québec are comprehensive, well grounded in international and national framework, and consistent with international human rights principles. The 2017 Action Plan marks an advance towards improving services for persons with autism. Policy documents also recognize existing barriers in the systems and propose some key directions to overcome them.» (p. 494) Moreover, several «existing services related to early identification and intervention of autism in Quebec were described across documents. The information on these services was generally targeted to care providers or to the families of children with autism. For the service providers, information included recommendations for care provisions, description of specialized training for professionals, and discussion of barriers to early identification and intervention for autism. Analysis of policy documents also revealed an intent to increase family awareness of resources and financial supports available to them, e.g., financial assistance programs for families living with a disabled person […]. Other policy documents provide parents with information about clinical services and resources […] and educational and support programs available to them […]. Some policies aim to improve safety and well-being of children with autism by providing information about their rights and relevant support services and programs, e.g., dealing with bullying […]. Other specific guidelines are intended to inform families about fair sharing of responsibilities in order to promote gender equality […].» (p. 487-488)