Definition and Improvement of the Concept and Tools of a Psychosocial Intervention Program for Parents in Pediatric Oncology: A Mixed-Methods Feasibility Study Conducted with Parents and Healthcare Professionals
Référence bibliographique 
Ogez, David, Bourque, Claude-Julie, Péloquin, Katherine, Ribeiro, Rebeca, Bertout, Laurence, Curnier, Daniel, Drouin, Simon, Laverdière, Caroline, Marcil, Valérie, Rondeau, Émélie, Sinnett, Daniel et Sultan, Serge. 2019. «Definition and Improvement of the Concept and Tools of a Psychosocial Intervention Program for Parents in Pediatric Oncology: A Mixed-Methods Feasibility Study Conducted with Parents and Healthcare Professionals ». Pilot and Feasibility Studies, vol. 5, p. 1-14.
Intentions : «The study’s main objective was to refine TAKING BACK CONTROL TOGETHER [an intervention program] following interviews with end-users: pediatric oncology healthcare professionals and parents of children with cancer. Specifically, this study aimed to [...] evaluate and [...] provide suggestions to improve the program’s relevance, acceptability, material, practical implementation, and technique procedures.» (p. 4)
Échantillon/Matériau : The research team «recruited a convenience sample of healthcare professionals and parents through internal email and online social media, respectively.» (p. 4) «Six of the 22 healthcare professionals who were invited agreed to participate in this study. […] Twelve parents responded to the invitation to participate in this study. Of these responses, six parents […] who had lived through their child’s cancer experience agreed to participate and were included in the study.» (p. 6)
Type de traitement des données : Analyse statistique Analyse de contenu
«In line with recommendations on program development, [the authors] refined the design of TAKING BACK CONTROL TOGETHER, a manualized intervention program to reduce parental distress in pediatric oncology.» (p. 10) The authors «identified strengths and limitations, and collected suggestions for modifications of the intervention. The results support the pertinence of the intervention. The concept of the program and its components aim to restore control through individual sessions that offer PSST [problem-solving skills training] and maintain unity within parents’ couples by reinforcing dyadic coping and marital communication during the couple sessions. The results also highlighted benefits such as offering emotional support, and an opportunity to take back long-term control, i.e., well beyond the oncological treatments. The benefits also concerned the relevance of offering support for parents with high levels of distress while including single-parent families; and the program’s manualized aspect, which promotes its transmission to healthcare professionals and parents alike. […] Participants highlighted some limitations, including the fact that this intervention could be an additional burden for some, that the wording of the parent manual used a writing style difficult to understand, and was probably too detailed. Participants also questioned the feasibility of meeting parents at home for the couple sessions.» (p. 10)