Résultats de recherche

1. Objectifs

Intentions :
«[T]his study sought to better understand the daily experiences of family caregivers (e.g. parents and legal guardians) of children living with OI [osteogenesis imperfecta]». (p. 3000)

2. Méthode

Échantillon/Matériau :
«This study was part of a larger study where the primary aim was to explore the views of OI family caregivers on using Internet-based technologies to support their caregiving needs […].» (p. 3000) «This study was conducted at a university-affiliated, bilingual (English and French), paediatric orthopaedic hospital in Montreal, Canada. A purposive sampling strategy was used to recruit family caregivers of children who were being treated for any type of OI at the study site.» (p. 3001) A total of 18 caregivers participated in the study.

Instruments :
Guide d’entretien semi-directif

Type de traitement des données :
Analyse de contenu

3. Résumé

«This study offered a comprehensive overview of the day-to-day experiences of caring for a child with brittle bones, the challenging periods that can disrupt day-to-day routines and the long-term strategies parents developed to make day-to-day OI caregiving easier.» (p. 3008) «For OI caregivers in [the] study, periods which presented particular challenges to OI caregivers’ day-to-day routines were periods with fractures, surgeries and pain. […] However, while the caregivers in [the] study acknowledged facing challenges and at times feeling overwhelmed, most appeared to be successfully managing as parents and caregivers. Caregivers explained that once they found the study site (a specialised OI treatment centre), they felt more supported as caregivers.» (p. 3008)

1. Objectifs

Intentions :
«[T]he aim of this study was to explore the views of caregivers of children with OI [osteogenesis imperfecta] on the uses of IBTs [Internet-based technologies] in supporting their caregiving needs.» (p. 2)

2. Méthode

Échantillon/Matériau :
«Purposive sampling was used to recruit adults (older than 18 years) who brought a patient (aged between 0 and 21 years) with OI to the study site for an OI-related appointment and who considered themselves to be a caregiver for the child.» (p. 2) The study took place at «a university-affiliated, pediatric orthopedic hospital in Montreal, Canada» (p. 2) «A total of 18 adult caregivers from 14 families were interviewed for this study […].» (p. 3)

Instruments :
Guide d’entretien semi-directif

Type de traitement des données :
Analyse de contenu

3. Résumé

The authors «found that OI caregivers were using IBTs to care for themselves and for their children with OI. Yet, although caregivers generally held positive views of IBTs, they were also concerned about the potential negative health effects of IBTs and the quality of IBT content.» (p. 8) «For example, OI caregivers used IBTs as a distraction to manage the physical challenges associated with treating their child’s pain. Social challenges, such as social isolation from family members and friends, were being partially overcome through videoconferencing support. Caregivers’ physical, emotional, and self-care challenges were being addressed through IBT support.» (p. 8) On the other hand, «[f]or medical information on OI, such as treatments and fracture prognoses, caregivers much preferred information that came from a knowledgeable OI health care provider or institution. However, when knowledgeable providers were not available, caregivers turned to the internet.» (p. 8)