Mothers as Caregivers to their Developmentaly Disabled Child and their Access to Social S#ervice
Référence bibliographique 
Caruana, Antonina. 1996. «Mothers as Caregivers to their Developmentaly Disabled Child and their Access to Social S#ervice». Mémoire de maîtrise, Montréal, Université de Montréal, École de service social.
Intentions : « This exploratory study was undertaken in order to provide a cross-cultural analysis of mothers as CAREGIVERS to their disabled child. The focus will be on the psychosocial factors affecting these primary CAREGIVERS, their motivating values and factors, their access to available support systems and networks as well as the barriers such mothers encounter in accessing available support networks and services. » (p. 3)
Questions/Hypothèses : - « What is the subjective reality of mothers as primary caregivers to their chronically disabled children in the cultural groups chosen? » (p. 3) - « Do certain values and factors, such as religious, spiritual, philosophical and cultural orientation, influence the mothers’ ways and attitudes towards caring for their disabled child? (p. 3) - « Are mothers in this research adequately accessing available support systems and services? If not, why not and what are the barriers encountered? » (p. 3)
Échantillon/Matériau : « 12 mothers coming from three ethnic communities (Italian, Chinese, South Asian) caring for a child with special needs » (p. 47)
Instruments : - Questionnaire : 77 questions and divided in 2 sections; - Interview were conducted over a period af 7 months, between may and december 1994. Each of the interview were tape-recorded. Each interview lasted approximately ninety minutes. (p. 52)
Type de traitement des données : Analyse de contenu
This exploratory study provides a cross-cultural analysis of mothers as primary caregivers to their developmentally disabled child and of their access to social service. The focus is on psycho-social factors affecting these primary caregivers, their motivating values and factors, their access to available support systems and networks as well as the barriers they encounter in accessing them. Twelve mothers coming from three ethnic communities (Italian, Chinese, South Asian) caring for a child with special needs were interviewed in this study. Their socio-demographic profile is presented as well as the impacts of full-time caregiving on the mothers’ standard of living, education or employment opportunities and leisure time activities. Caregiving responsabilities were also found to have an impact on the mothers’ physiological and psychological wellbeing. Due to a « Cultural pride » in referring themselves foremost to the family and other informal support systems, the mothers rarely consult the formal support systems. The availability and accessability of these systems were therefore deemed to be essential components of our recommandations to service providers, community organization and government bodies alike.