Understanding the Role of Personal Transformation in Adults who Have Survived Childhood Cancer

Understanding the Role of Personal Transformation in Adults who Have Survived Childhood Cancer

Understanding the Role of Personal Transformation in Adults who Have Survived Childhood Cancer

Understanding the Role of Personal Transformation in Adults who Have Survived Childhood Cancers

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Référence bibliographique [9987]

Goldstein, Cathy Ann. 2010. «Understanding the Role of Personal Transformation in Adults who Have Survived Childhood Cancer». Mémoire de maîtrise, Montréal, Université Concordia, Département des sciences de l’éducation.

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Fiche synthèse

1. Objectifs


Intentions :
«The purpose of this study is to explore the narrative stories of adult survivors of childhood cancer and understand how they describe their quality of life.» (p. 35)

Questions/Hypothèses :
«How do adults who survived childhood cancer describe the long term effects that cancer has had on them as young adults? [...] How does their definition of quality of life compare to past research on thriving and quality of life? [...] 3) Is there a relationship between self-reported quality of life outcomes (survey) and narrative themes that emerge in the adults‟ stories of transformational growth?» (p. 36)

2. Méthode


Échantillon/Matériau :
«Participants were selected based on the following characteristics: the participant had a cancer diagnosis between birth and 19 years of age and had a minimum of 5 years post-treatment. Using the above criteria, ten participants were recruited to participate (n=10). The participants were based in North America however, they were not from the Montreal area.» (p. 37)

Instruments :
- Questionnaire
- Guide d’entretien semi-directif

Type de traitement des données :
Analyse de contenu
Analyse statistique

3. Résumé


According to the author, «[t]he narrative stories of transformation of childhood cancer survivors were examined in comparison to the established research in the same area. The established research that is available is based on statistical criteria, which examines the quality of life of adult survivors. Based on such criteria, the quality of life of childhood cancer survivors has indicated mixed results indicating that more research is needed to better serve the growing population of survivors. In contrast, this study sought to compare the outcome of a quality of life survey versus the individual stories of survivors. The findings suggest that the survey does not accurately reflect the quality of life of the adult survivors. Also by including narrative stories this study offers a forum for survivors by giving them a voice.» (p. 3)
Note : Cette recherche s’intéresse, entre autres, à l’impact du cancer d’un enfant sur sa famille. La question du support familial est aussi abordée.