1. Objectifs

Intentions :
Présenter les situations rencontrées par les familles désirant pourvoir aux soins à donner à leur enfant atteints d’une maladie grave et faire la lumière sur les besoins physiques et psychologiques de ces enfants et de leurs familles ainsi que les possibilités et obstacles qu’ils rencontreront.

2. Méthode

Type de traitement des données :
Réflexion critique

3. Résumé

« Palliative care services for children with life-threatening diseases and their families have been developing since the late 1970s, and it has become clear that home care is a choice that many families prefer. Early programs offered help particularly top cancer patients (1-4), but some were also available for children with non-malignant diseases and their families. Although the broad principles and philosophy of care are common for all children, many of the specific aspects differ and are influenced considerably by the diagnosis and natural history of the child’s illness as well as by the individual’s family’s personality and coping style. » (p. 33)