Conceptualization and Sources of Costs from Breast Cancer: Findings from Patient and Caregiver Focus Groups

Conceptualization and Sources of Costs from Breast Cancer: Findings from Patient and Caregiver Focus Groups

Conceptualization and Sources of Costs from Breast Cancer: Findings from Patient and Caregiver Focus Groups

Conceptualization and Sources of Costs from Breast Cancer: Findings from Patient and Caregiver Focus Groupss

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Référence bibliographique [3649]

Lauzier, Sophie, Maunsell, Elizabeth, De Koninck, Maria, Drolet, Mélanie, Hébert-Croteau, Nicole et Robert, Jean. 2005. «Conceptualization and Sources of Costs from Breast Cancer: Findings from Patient and Caregiver Focus Groups ». Psycho-Oncology, vol. 14, no 5, p. 351-360.

Fiche synthèse

1. Objectifs


Intentions :
« In this study, we are concerned with the financial costs to patients and caregivers. [...] We used the focus group discussions to help determine whether participants felt that the interview prototypes covered all costs considered important, frequent and burdensome to breast cancer patients and families, and whether they did so in a way that was easily understandable and in appropriate language to a wide range of potential respondents (Frey and Fontana, 1993; Kitzinger, 1995; Morgan, 1988; Wolff et al., 1993). The focus group discussions were also analysed to describe and better understand how the woman and her caregiver conceptualized their experience of costs from breast cancer. In this paper, we present the findings relative to this latter analysis. » p. 352)

2. Méthode


Échantillon/Matériau :
« Focus group participants were drawn from two populations: patients first treated for newly diagnosed non-metastatic breast cancer in the 18 months prior to the focus group study; and the person they identified as a primary caregiver. Subjects were recruited in Montreal (3,426,350 inhabitants), Quebec City (682,757) and Baie-Comeau (28,940). » (p. 352)

Instruments :
« A professional moderator led the focus groups using a semi-structured topic guide developed by the research team and the moderator. » (p. 354)

Types de traitement des données :
Analyse de contenu

3. Résumé


« Participants painted a portrait of breast cancer as a disease with considerable impact on financial and other dimensions of their personal and family lives, that could also weaken an individual’s and a family’s financial situation. Although not the primary objective of these focus groups, findings from them provide a fuller understanding of the context, process and impact of costs related to breast cancer. They indicate that breast cancer patients and their family in Canada may face numerous costs of different types, even if the treatment and hospital-related costs are paid for by the public health care system. Some participants emphasized the extent of costs related to getting to treatments that were not available in their region. Others identified wage losses from work absences as being a major source of financial worry. Several people also stressed the significant changes the disease can cause in the everyday lives of patients and caregivers. For the caregivers, it was these changes, rather than costs per se, that seemed to be most important. » (p. 358)