What Will Happen to my Mom? A Grounded Theory on Nurses’ Support of Relatives’ End-of-Life Decision-Making Process for Residents Living with Dementia in Long-Term Care Homes

What Will Happen to my Mom? A Grounded Theory on Nurses’ Support of Relatives’ End-of-Life Decision-Making Process for Residents Living with Dementia in Long-Term Care Homes

What Will Happen to my Mom? A Grounded Theory on Nurses’ Support of Relatives’ End-of-Life Decision-Making Process for Residents Living with Dementia in Long-Term Care Homes

What Will Happen to my Mom? A Grounded Theory on Nurses’ Support of Relatives’ End-of-Life Decision-Making Process for Residents Living with Dementia in Long-Term Care Homess

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Référence bibliographique [22629]

Daneau, Stéphanie, Bourbonnais, Anne et Legault, Alain. 2022. «What Will Happen to my Mom? A Grounded Theory on Nurses’ Support of Relatives’ End-of-Life Decision-Making Process for Residents Living with Dementia in Long-Term Care Homes ». Dementia, vol. 21, no 4, p. 1399-1415.

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Fiche synthèse

1. Objectifs


Intentions :
«[T]he aim of the study was to propose a theory on nurses’ support of relatives making end-of-life decisions for an older person living with dementia in a long-term care home.» (p. 1400)

2. Méthode


Échantillon/Matériau :
«The study took place in long-term care homes in Montréal, Quebec, Canada, with nurses and relatives of residents. […] A total of nine nurses and 10 relatives were recruited […].» (p. 1401)

Instruments :
Guide d’entretien semi-directif

Type de traitement des données :
Analyse de contenu

3. Résumé


The results of the study show «the fundamental nature of the trusting relationship in the nursing support of relatives in this context. It was easier for relatives to accept the support from the nurses once this trusting relationship was established. Nurses also felt more comfortable in their role of supporting the decision-making process when they qualified the trusting relationship with relatives as a good one. This then allowed nurses to explore the refusal of palliative or end-of-life care and to support relatives’ need to witness residents’ clinical condition, as well as to educate at the best time by clearly conveying the information relatives needed. Although the importance of a trusting relationship is not new, the findings of the study establish its powerful impact on the support of relatives’ end-of-life decision-making process. In addition, they have made it possible to concretely identify the specific dimensions influencing the trusting relationship in this context.» (p. 1411)