1. Objectifs

Intentions :
«The aim of the current study was to expand the knowledge of parental/family perspectives regarding the health of their children born preterm.» (p. F495)

2. Méthode

Échantillon/Matériau :
This study is affiliated with the Parents’ Voices Project, which «is a cross-sectional survey of parents of extremely preterm children seen at a level-III university hospital neonatal follow-up clinic.» (p. F495) «Between 1 July 2018 and 31 July 2019, parents of preterm children who were scheduled for a neonatal follow-up clinic visit were approached to participate.» (p. F496) In the study, «248 parents of 213 children (83% of eligible children) participated and provided 285 individual responses.» (p. F496)

Instruments :
Questionnaire

Type de traitement des données :
Analyse statistique
Analyse de contenu

3. Résumé

«This is the first study investigating how parents rate their children’s health and also their concerns and priorities: what they wished they could improve in an open-ended fashion (without an a priori).» (p. F499) According to the authors, «[p]arents evaluate the health of their preterm children as being very good, with positive perspectives. Many express concerns outside the developmental sphere, such as medical fragility, nutrition and respiratory health. Many also express concerns about emotions and behaviour, which are not addressed nor categorised optimally in follow-up studies. Priorities differ according to the child’s level of NDI [neurodevelopmental impairment], age and parental level of education. Incorporating measures reflecting what parents view as important can ensure that research findings are meaningful to families and that clinical follow-up targets relevant issues.» (p. F499)