Needs of Patients with Dementia and their Caregivers in Primary Care: Lessons Learned from the Alzheimer Plan of Quebec

Needs of Patients with Dementia and their Caregivers in Primary Care: Lessons Learned from the Alzheimer Plan of Quebec

Needs of Patients with Dementia and their Caregivers in Primary Care: Lessons Learned from the Alzheimer Plan of Quebec

Needs of Patients with Dementia and their Caregivers in Primary Care: Lessons Learned from the Alzheimer Plan of Quebecs

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Référence bibliographique [22443]

Khanassov, Vladimir, Rojas-Rozo, Laura, Sourial, Rosa, Yang, Xin Qiang et Vedel, Isabelle. 2021. «Needs of Patients with Dementia and their Caregivers in Primary Care: Lessons Learned from the Alzheimer Plan of Quebec ». BMC Family Practice, vol. 22, p. 1-9.

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Fiche synthèse

1. Objectifs


Intentions :
«[T]he objective of this study is to identify PWDs’ [persons living with dementia] and caregivers’ met and unmet needs and to describe their experience within the context of the [Quebec Alzheimer] Plan implementation.» (p. 2)

2. Méthode


Échantillon/Matériau :
«This study was conducted in three FMPs [family medicine practice] in Montreal, Quebec.» (p. 3) The authors «recruited a total of 29 PWD and 25 caregivers for Phase 1 [quantitative], of which 7 dyads (14 participants) participated in Phase 2 [qualitative].» (p. 3)

Instruments :
- Questionnaires
- Guide d’entretien semi-directif

Type de traitement des données :
Analyse statistique
Analyse de contenu

3. Résumé


The results of this study show that «the Quebec Alzheimer plan with its focus on the involvement of FP [family physicians] and nurses in the primary care practices demostrated an overall success to meet the health needs of this vulnerable population.» (p. 7) «Caregivers often reported lack of the emotional support and counselling. While the community services to support the caregivers exist, this particular need continues to be prevalent. The explanation could be that frequently the caregivers opt to not use the services due to their unsuitability to their expectations. Moreover, often a caregiver has a FP different from the patient that adds a complexity to a comprehensive assessement of their needs. […] The turnover of the personnel in the community services is another concern. The homecare services should improve the continuity of homecare services such as to assign the same provider to the patients and their caregivers and to ensure the collaboration and good communication between family caregivers and staff from home services. This can promote more consistency on patient centered care and more importantly, care based on a trusting long-term relationship.» (p. 7)