Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies

Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies

Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies

Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategiess

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Référence bibliographique [21854]

Jacques, Claudine, Saulnier, Geneviève, Ethier, Agnès et Soulieres, Isabelle. 2021. «Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies ». Journal of Autism and Developmental Disorders, vol. 52, p. 3626-3638.

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Fiche synthèse

1. Objectifs


Intentions :
«[T]he goal of our study was to gain a better understanding of the needs of autistic children and their families in the context of a pandemic by identifying facilitating factors and barriers to make recommendations that could help guide services.» (p. 3627)

2. Méthode


Échantillon/Matériau :
«One hundred and nine parents of autistic children (88 boys, 19 girls, and two non-binary) aged between 2.6 and 18.10 years […] completed the questionnaire […] and 56 children ([…] 46 boys, nine girls, and one non-binary) aged 5.75 to 18 years filled out a subsection of the same questionnaire. All the participants lived in Quebec, a French-speaking province of Canada.» (p. 3627)

Instruments :
Questionnaire

Type de traitement des données :
Analyse statistique

3. Résumé


«The results from the parents’ section showed that most of the sample considered the pandemic to be a very stressful time and that, for half of the sample, this was the case ''often'' or ''always.'' There was a moderate correlation between concerns about the child’s development or difficulties managing the child’s behaviors before and during the pandemic. There were no correlations between the facilitating factors/barriers and concerns about the child’s development or difficulties managing the child’s behaviors during the pandemic. However, three main facilitators were identified by the parents in multiple-choice and open-ended questions: understanding their autistic child’s characteristics, implementing appropriate interventions, such as setting up a routine, and maintaining social relationships. In addition, too much access to electronics was identified as one of the main barriers.» (p. 3633) Plus, «[m]ore than three quarters of the children also considered the pandemic to be a stressful time, with half of them finding it often or always stressful. Like their parents who pointed out that social isolation was a barrier, the children identified the lack of socialization as a main barrier and emphasized the importance of a routine.» (p. 3633)