1. Objectifs

Intentions :
«[T]he aim of this study was to explore the views of caregivers of children with OI [osteogenesis imperfecta] on the uses of IBTs [Internet-based technologies] in supporting their caregiving needs.» (p. 2)

2. Méthode

Échantillon/Matériau :
«Purposive sampling was used to recruit adults (older than 18 years) who brought a patient (aged between 0 and 21 years) with OI to the study site for an OI-related appointment and who considered themselves to be a caregiver for the child.» (p. 2) The study took place at «a university-affiliated, pediatric orthopedic hospital in Montreal, Canada» (p. 2) «A total of 18 adult caregivers from 14 families were interviewed for this study […].» (p. 3)

Instruments :
Guide d’entretien semi-directif

Type de traitement des données :
Analyse de contenu

3. Résumé

The authors «found that OI caregivers were using IBTs to care for themselves and for their children with OI. Yet, although caregivers generally held positive views of IBTs, they were also concerned about the potential negative health effects of IBTs and the quality of IBT content.» (p. 8) «For example, OI caregivers used IBTs as a distraction to manage the physical challenges associated with treating their child’s pain. Social challenges, such as social isolation from family members and friends, were being partially overcome through videoconferencing support. Caregivers’ physical, emotional, and self-care challenges were being addressed through IBT support.» (p. 8) On the other hand, «[f]or medical information on OI, such as treatments and fracture prognoses, caregivers much preferred information that came from a knowledgeable OI health care provider or institution. However, when knowledgeable providers were not available, caregivers turned to the internet.» (p. 8)