1. Objectifs

Intentions :
«[T]his study sought to better understand the daily experiences of family caregivers (e.g. parents and legal guardians) of children living with OI [osteogenesis imperfecta]». (p. 3000)

2. Méthode

Échantillon/Matériau :
«This study was part of a larger study where the primary aim was to explore the views of OI family caregivers on using Internet-based technologies to support their caregiving needs […].» (p. 3000) «This study was conducted at a university-affiliated, bilingual (English and French), paediatric orthopaedic hospital in Montreal, Canada. A purposive sampling strategy was used to recruit family caregivers of children who were being treated for any type of OI at the study site.» (p. 3001) A total of 18 caregivers participated in the study.

Instruments :
Guide d’entretien semi-directif

Type de traitement des données :
Analyse de contenu

3. Résumé

«This study offered a comprehensive overview of the day-to-day experiences of caring for a child with brittle bones, the challenging periods that can disrupt day-to-day routines and the long-term strategies parents developed to make day-to-day OI caregiving easier.» (p. 3008) «For OI caregivers in [the] study, periods which presented particular challenges to OI caregivers’ day-to-day routines were periods with fractures, surgeries and pain. […] However, while the caregivers in [the] study acknowledged facing challenges and at times feeling overwhelmed, most appeared to be successfully managing as parents and caregivers. Caregivers explained that once they found the study site (a specialised OI treatment centre), they felt more supported as caregivers.» (p. 3008)