''Everyone Has a Role'': Perspectives of Service Users with First-Episode Psychosis, Family Caregivers, Treatment Providers, and Policymakers on Responsibility for Supporting Individuals with Mental Health Problems

''Everyone Has a Role'': Perspectives of Service Users with First-Episode Psychosis, Family Caregivers, Treatment Providers, and Policymakers on Responsibility for Supporting Individuals with Mental Health Problems

''Everyone Has a Role'': Perspectives of Service Users with First-Episode Psychosis, Family Caregivers, Treatment Providers, and Policymakers on Responsibility for Supporting Individuals with Mental Health Problems

''Everyone Has a Role'': Perspectives of Service Users with First-Episode Psychosis, Family Caregivers, Treatment Providers, and Policymakers on Responsibility for Supporting Individuals with Mental Health Problemss

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Référence bibliographique [21147]

Pope, Megan A., Jordan, Gerald, Venkataraman, Shruthi, Malla, Ashok K. et Iyer, Srividya N. 2019. «''Everyone Has a Role'': Perspectives of Service Users with First-Episode Psychosis, Family Caregivers, Treatment Providers, and Policymakers on Responsibility for Supporting Individuals with Mental Health Problems ». Qualitative Health Research, vol. 29, no 9, p. 1299-1312.

Fiche synthèse

1. Objectifs


Intentions :
«The purpose of this study was to explore the views of individuals with first-episode psychosis (FEP), their families/caregivers, treatment providers, and mental health policy-/decision-makers as to who should be responsible for supporting individuals with mental health problems, and what responsibilities they ascribe to these parties.» (p. 1300)

2. Méthode


Échantillon/Matériau :
Des entrevues de groupe ont eu lieu auprès de 18 travailleurs du milieu de la santé, 13 personnes recevant des soins, ainsi que de 12 membres de la famille. Les participants (n = 43) ont été recrutés auprès d’une institution universitaire en santé mentale de Montréal.

Instruments :
Guide d’entretien semi-directif

Type de traitement des données :
Analyse de contenu

3. Résumé


The «analysis yielded three main themes: spheres of responsibility and influence, relative and nuanced roles and responsibilities, and perceived failings of the health care system.» (p. 1302) The authors explore «perceptions of who should be responsible for supporting individuals with mental health problems and what responsibilities they ascribe to these parties. [They] found that while participants widely perceived individuals with mental health problems to have ultimate responsibility for their own lives and recovery, they attributed important support roles and responsibilities to various other social actors.» (p. 1308) «Families were perceived by all stakeholders (including families themselves) to play a pivotal role in supporting individuals with mental health problems and to be most responsible for providing emotional support, affection, and acceptance. [Participants] felt that families should be aware of and assist in their ill relative’s treatment [and] should be attentive to and provide the treatment team with updates about changes in their clinical state […].» (p. 1303) Moreover, policymakers «expressed that families should advocate for their ill relative, promote the cause of mental health, help reduce stigma, and be involved in mental health policy-and decision-making. Notably, a few service users were reluctant to assign too much responsibility to families for fear of overburdening them, and voiced appreciation for all their families did for them.» (p. 1304)