1. Objectifs

Intentions :
«The purpose of this project is to develop a specialized music therapy program to meet the psychosocial, physiological, and spiritual needs of patients receiving neuro-palliative care, and their families.» (p. 3)

Questions/Hypothèses :
Les questions de recherche sont les suivantes: «What are the components of a music therapy program for patients and families receiving neuro-palliative care? [Which] music therapy interventions are most appropriate for patients receiving neuro-palliative care, and their families? Which patient/family needs and goals can music therapy address in the neuro-palliative care setting?» (p. 3)

2. Méthode

Échantillon/Matériau :
L’échantillon est composé d’une musicothérapeute et d’une infirmière clinicienne en soins palliatifs et neurologiques. Les deux participantes travaillent dans un hôpital de Montréal.

Instruments :
Guide d’entretien semi-directif

Type de traitement des données :
Analyse de contenu

3. Résumé

The author has found that the «four main emergent themes were: needs of patients in neuro-palliative care, needs of family members in neuro-palliative care, music therapy interventions appropriate for use in neuro-palliative care, and components of a neuro-palliative care music therapy program, with subthemes emerging within some of these.» (p. 18) More specifically, family «members’ needs identified by interview participants clustered into two themes: psychosocial and spiritual. [Regarding the psychosocial aspect, the following needs have been identified: support] for managing patients’ cognitive and physical losses, emotional expression (particularly of anger and sadness), a sense of empowerment in regards to patient care, emotional support and comfort, companionship, coping strategies, communication and connection with the patient, shared experience and enjoyment with the patient, and a sense of trust that the patient is cared for when family is not present.» (p. 19) Moreover, spiritual «needs of patients’ family members in neuro-palliative care included: expression of spiritual or religious beliefs, expression of hope and meaning, spiritual support for existential questions, and expression of gratitude for patient’s care. [An] over-arching need of family members was also identified, [this] need was for health care professionals to understand that family members’ needs change as the patient’s condition declines.» (p. 20)