Use of a Patient Decision Aid for Prenatal Screening for Down Syndrome: What do Pregnant Women Say?

Use of a Patient Decision Aid for Prenatal Screening for Down Syndrome: What do Pregnant Women Say?

Use of a Patient Decision Aid for Prenatal Screening for Down Syndrome: What do Pregnant Women Say?

Use of a Patient Decision Aid for Prenatal Screening for Down Syndrome: What do Pregnant Women Say?s

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Référence bibliographique [19387]

Portocarrero, Maria Esther Leiva, Giguère, Anik M. C., Lépine, Johanie, Garvelink, Mirjam M., Robitaille, Hubert, Delanoë, Agathe, Lévesque, Isabelle, Wilson, Brenda J., Rousseau, François et Légaré, France. 2017. «Use of a Patient Decision Aid for Prenatal Screening for Down Syndrome: What do Pregnant Women Say? ». BMC Pregnancy and Childbirth, vol. 17, no 1, p. 1-9.

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Fiche synthèse

1. Objectifs


Intentions :
This study aims «to identify factors influencing pregnant women’s use of a PtDA [patient decision aids] for prenatal screening for DS [Down syndrome].» (p. 2)

2. Méthode


Échantillon/Matériau :
This research uses a «sample of 45 pregnant women split equally between three health centers in the Quebec City region, Canada: a birthing center (services provided by midwives), a family medicine site (FMS) (services provided by family physicians) and a university hospital (services provided by obstetricians/gynecologists).» (p. 2)

Instruments :
Guide d’entretien semi-directif

Type de traitement des données :
Analyse de contenu

3. Résumé


«We identified factors influencing pregnant women’s use of a PtDA for prenatal screening for DS.» (p. 5) «Overall, the three most frequently mentioned factors were: 1) influence of the woman’s partner, 2) presentation of the PtDA by a health professional and a discussion about it, and 3) lack of knowledge about PtDAs. Our results lead us to make four main observations. First, as we observed, even if participating women identified advantages to using a PtDA about prenatal screening for DS, they also identified disadvantages, suggesting a certain ambivalence overall. On the one hand they said it provided useful information for decision-making, but they also said the amount of information could create confusion during decision-making. […] Second […] results provide a more in-depth understanding of pregnant women’s opinions regarding the use of a PtDA [mentionning] that knowing this information on the risks and benefits of the options would most likely increase their stress. […] Third, the most frequently reported factor influencing the use of the PtDA was the woman’s partner […]. [Fourth], only a small number of participants said that the PtDA could help them identify what is most important for them and thus help them make the decision that best meets their values and their preferences.» (p. 7)