How to Support Families of Children with Disabilities? An Exploratory Study of Social Support Services

How to Support Families of Children with Disabilities? An Exploratory Study of Social Support Services

How to Support Families of Children with Disabilities? An Exploratory Study of Social Support Services

How to Support Families of Children with Disabilities? An Exploratory Study of Social Support Servicess

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Référence bibliographique [11533]

Tétreault, Sylvie, Blais-Michaud, Sophie, Marier Deschênes, Pascale, Beaupré, Pauline, Gascon, Hubert, Boucher, Normand et Carrière, Monique. 2012. «How to Support Families of Children with Disabilities? An Exploratory Study of Social Support Services ». Child and Family Social Work.

Fiche synthèse

1. Objectifs


Intentions :
«The global percentage of children aged between 0 and 14 years living with moderate or severe disabilities has been estimated at 5% according to the World Health Organization (2004). […] Within this context, the need to identify appropriate services is growing. Identification of the distinctive types of support and their overall effectiveness is essential to promote existing services and to implement new resources for families. The aim of the present study is to operationalize and present unified definitions for the different types of support.» (p. 1) «Considering the context previously described, the present research has important implications as it unifies definitions of support and describes different forms of support for parents of children with disabilities. To achieve this goal, a typology was developed and subsequently validated by individuals and organizations from seven different countries.» (p. 3)

2. Méthode


Échantillon/Matériau :
Pour valider leur typologie, les auteurs ont eu recours à différentes méthodes de collecte de données: «Three different methods of collecting data were used. First, electronic questionnaires with the web application SurveyMonkey were filled by representatives of organizations outside Quebec. […]To go further into the exploration of support services, telephone interviews were conducted exclusively with representatives from Quebec organizations. […] Due to the numerous possibilities in terms of ways to provide support services to families, the typology’s framework was applied to classify all data collected from electronic questionnaires, telephone interviews
and websites. […] Each resource was described through an index card gathering collected data. […] A database of family support was created with Access software (2007 version; Microsoft, Redmond, WA, USA) using the information from the index cards.» (p. 4-5)

Instruments :
- Questionnaire
- Guide d’entretien

Type de traitement des données :
Réflexion critique

3. Résumé


«The classification of support services presented in this paper constitutes a framework for the characterization of respite, child minding, emergency support and nine other different types of support. Regardless of the child’s disabilities, the typology could be used by social workers or other rehabilitation professionals as a tool to evaluate parents’ needs in terms of support and in accordance with a family-centred intervention. With a defined range of possibilities, parents could be more likely to identify effective strategies for themselves according to their specific situation. This way, the typology develops the practitioners’ awareness of services that should be provided within their respective organizations. Interviewed stakeholders stressed the importance of intensifying the availability of resources and of creating new ones in a coordinated manner in order to ensure the complementarity of services.» (p. 8)