1. Objectifs

Intentions :
«Nous proposons une mesure unifiée pour évaluer le fardeau économique qui incombe aux familles durant la phase palliative de la maladie et nous comparons cette mesure à un seuil de faible revenu de Statistique Canada.» (p. 210)

2. Méthode

Échantillon/Matériau :
«Un échantillon de patients recevant des soins palliatifs à domicile et leur principaux proche-aidants ont été recrutés dans cinq régions urbaines canadiennes» (p. 210), dont Montréal.

Instruments :
Questionnaire

Type de traitement des données :
Analyse statistique

3. Résumé

« [W]e used a survey to estimate the economic losses due to caregiving. We followed these cases from the patient’s entry into a community palliative care program until death, or to a maximum of six months. We measured the economic loss due to caregiving as the value of lost work and out-of pocket care-related expenses. Our results for the sample indicate that a relatively small number of persons sustain large economic losses.» (p. 213-214) «About 9 percent of families incurred economic losses in excess of 10 percent of their pre-study gross annual income; low-income status increased tram 27 (before) to 40 (after). [...] This is the first study to provide a unified measure of economic losses of caregiving that can be related to a publicly designated low-income threshold.» (p. 210)