Portocarrero, Maria Esther Leiva, Giguère, Anik M. C., Lépine, Johanie, Garvelink, Mirjam M., Robitaille, Hubert, Delanoë, Agathe, Lévesque, Isabelle, Wilson, Brenda J., Rousseau, François et Légaré, France.
Use of a Patient Decision Aid for Prenatal Screening for Down Syndrome: What do Pregnant Women Say?
Référence bibliographique 
Portocarrero, Maria Esther Leiva, Giguère, Anik M. C., Lépine, Johanie, Garvelink, Mirjam M., Robitaille, Hubert, Delanoë, Agathe, Lévesque, Isabelle, Wilson, Brenda J., Rousseau, François et Légaré, France. 2017. «Use of a Patient Decision Aid for Prenatal Screening for Down Syndrome: What do Pregnant Women Say? ». BMC Pregnancy and Childbirth, vol. 17, no 1, p. 1-9.
Intentions : This study aims «to identify factors influencing pregnant women’s use of a PtDA [patient decision aids] for prenatal screening for DS [Down syndrome].» (p. 2)
Échantillon/Matériau : This research uses a «sample of 45 pregnant women split equally between three health centers in the Quebec City region, Canada: a birthing center (services provided by midwives), a family medicine site (FMS) (services provided by family physicians) and a university hospital (services provided by obstetricians/gynecologists).» (p. 2)
Instruments : Guide d’entretien semi-directif
Type de traitement des données : Analyse de contenu
«We identified factors influencing pregnant women’s use of a PtDA for prenatal screening for DS.» (p. 5) «Overall, the three most frequently mentioned factors were: 1) influence of the woman’s partner, 2) presentation of the PtDA by a health professional and a discussion about it, and 3) lack of knowledge about PtDAs. Our results lead us to make four main observations. First, as we observed, even if participating women identified advantages to using a PtDA about prenatal screening for DS, they also identified disadvantages, suggesting a certain ambivalence overall. On the one hand they said it provided useful information for decision-making, but they also said the amount of information could create confusion during decision-making. […] Second […] results provide a more in-depth understanding of pregnant women’s opinions regarding the use of a PtDA [mentionning] that knowing this information on the risks and benefits of the options would most likely increase their stress. […] Third, the most frequently reported factor influencing the use of the PtDA was the woman’s partner […]. [Fourth], only a small number of participants said that the PtDA could help them identify what is most important for them and thus help them make the decision that best meets their values and their preferences.» (p. 7)
Role of Psychosocial Factors and Health Literacy in Pregnant Women’s Intention to Use A Decision Aid for Down Syndrome Screening: A Theory-Based Web Survey
Référence bibliographique 
Delanoë, Agathe, Lépine, Johanie, Turcotte, Stéphane, Portocarrero, Maria Esther Leiva, Robitaille, Hubert, Giguère, Anik M. C., Wilson, Brenda J., Witteman, Holly O., Lévesque, Isabelle, Guillaumie, Laurence et Légaré, France. 2016. «Role of Psychosocial Factors and Health Literacy in Pregnant Women’s Intention to Use A Decision Aid for Down Syndrome Screening: A Theory-Based Web Survey ». Journal of Medical Internet Research, vol. 18, no 10, p. 147-164.
Intentions : «The objective of this study was to identify the influence of psychosocial factors on pregnant women’s intention to use a DA [decision aid] for prenatal screening for Down syndrome (DS).» (p. 147)
Échantillon/Matériau : L’étude est basée sur la participation de 350 femmes enceintes de la province de Québec.
Instruments : Questionnaire
Type de traitement des données : Analyse statistique
«Deciding about undergoing prenatal screening is difficult, as it entails risks, potential loss and regrets, and challenges to personal values. Shared decision making and decision aids […] can help pregnant women give informed and values-based consent or refusal to prenatal screening […].» (p. 147) Results indicate «that pregnant women showed high levels of intention to use a DA for prenatal screening for Down syndrome. Also, we observed that, in order of importance, attitude, moral and descriptive norms, and anticipated regret were the factors that explained most of their behavioral intention. In other words, the perception of the advantages of using a DA (attitude), the possible regret foreseen if the DA is not used (anticipated regret), the perception that it is a common practice (descriptive norm), and the feeling that using a DA for this decision would be in agreement with their moral values (moral norm) were significantly associated with a strong intention to use the DA. In addition, we identified 3 attitudinal beliefs significantly associated with women’s intention: perceiving that using a DA (1) would reassure them, (2) would facilitate their reflection with their spouse, and (3) would let them know about the advantages of doing or not doing a prenatal screening test for Down syndrome.» (p. 157)