Progress and Gaps in Quebec’s Autism Policy: A Comprehensive Review and Thematic Analysis
Référence bibliographique 
Zeidan, Jinan, Shikako-Thomas, Keiko, Ehsan, Annahita, Maioni, Antonia et Elsabbagh, Mayada. 2019. «Progress and Gaps in Quebec’s Autism Policy: A Comprehensive Review and Thematic Analysis ». Qualitative Research, vol. 110, no 4, p. 485-496.
Intentions : This article aims «to identify policy processes supporting services for children with autism and possible gaps across existing policies, especially in view of the most recent plan.» (p. 487)
Échantillon/Matériau : The authors «conducted a comprehensive review of autism-related policies and guidelines issued by the government of Quebec between 2010 and 2018.» (p. 487)
Type de traitement des données : Réflexion critique
According to the analysis, «autism policies articulated at the provincial level in Québec are comprehensive, well grounded in international and national framework, and consistent with international human rights principles. The 2017 Action Plan marks an advance towards improving services for persons with autism. Policy documents also recognize existing barriers in the systems and propose some key directions to overcome them.» (p. 494) Moreover, several «existing services related to early identification and intervention of autism in Quebec were described across documents. The information on these services was generally targeted to care providers or to the families of children with autism. For the service providers, information included recommendations for care provisions, description of specialized training for professionals, and discussion of barriers to early identification and intervention for autism. Analysis of policy documents also revealed an intent to increase family awareness of resources and financial supports available to them, e.g., financial assistance programs for families living with a disabled person […]. Other policy documents provide parents with information about clinical services and resources […] and educational and support programs available to them […]. Some policies aim to improve safety and well-being of children with autism by providing information about their rights and relevant support services and programs, e.g., dealing with bullying […]. Other specific guidelines are intended to inform families about fair sharing of responsibilities in order to promote gender equality […].» (p. 487-488)
Parents’ Perspectives on The Quality of Life of Adolescents With Cerebral Palsy: Trajectory, Choices And Hope
Référence bibliographique 
Shikako-Thomas, Keiko, Bogossian, Aline, Lach, Lucyna M., Shevell, Michael et Majnemer, Annette. 2013. «Parents’ Perspectives on The Quality of Life of Adolescents With Cerebral Palsy: Trajectory, Choices And Hope ». Disability and Rehabilitation, vol. 35, no 25, p. 2113-2122.
Intentions : «The present study aims at understanding the parents’ perspectives of their adolescents’ QoL [quality of life] in order to expand on the insights gained from the adolescents. Specifically, we wanted to understand how parents of adolescents with CP [cerebral palsy] perceive their child’s QoL and what aspects relating to the child, the child’s environment, and the disability may contribute to their perception of their adolescent’s QoL.» (p. 2114)
Échantillon/Matériau : L’étude est basée sur la participation de 16 adolescents montréalais (12 garçons et 4 filles) atteints de paralysie cérébrale de 14 de leurs parents (12 mères, 1 belle-mère, 1 père).
Instruments : Guide d’entretien directif
Type de traitement des données : Analyse de contenu
«Parents of adolescents with CP who participated in this study constructed the QoL as a complex interaction of intrinsic and extrinsic aspects threaded by processes related to the trajectory of their child developing with a disability in the transition from childhood to adolescence and from adolescence to adulthood. These processes were seen as being framed by hope and choices. From the parents’ perspective, the interaction of these intervening factors along with contextual and adolescent-related aspects, composed the transitional experience of well-being for adolescents with CP. Adolescents’ and parents’ previous and current experiences and ability to foresee both subjectively and objectively the next steps to a happy life were considered essential for an overall sense of adolescent well-being.» (p. 2020)