Cohen, Robin, Leis, Anne M., Kuhl, David, Charbonneau, Cécile, Ritvo, Paul et Ashbury, Fredrick D. 2006. «QOLLTI-F: Measuring Family Carer Quality of Life ». Palliative Medicine, vol. 20, no 8, p. 755-767.
Intentions : « The purpose of this article is to report the results of a multimethod study conducted over three phases to design a psychometrically and conceptually valid instrument to measure the QOL of carers of cancer patients receiving palliative care. » (p. 756)
Échantillon/Matériau : « Participants were carers from 12 Canadian palliative care services who were asked to complete QOLLTI-F on three occasions. » (p. 755) « A total of 245 carers completed QOLLTI-F + the two global items. One hundred and forty-nine carers completed the questionnaires on all three occasions, 51 completed them twice and 45 completed them only once. A total of 594 questionnaires were completed. » (p. 761)
Instruments : Le QOLLTI-F (Quality of Life in Life Threatening Illness - Family Carer Version)
Type de traitement des données : Analyse de contenu et analyse statistique
« The primary goal of palliative care is to optimize the quality of life (QOL) of people living with a life-threatening illness and that of their families. While there have been important advances in measurement of the QOL of palliative care patients, little attention has been paid to the QOL of their carers (family caregivers). To develop and deliver the most effective services to these carers, their QOL needs to be measured with acceptable and psychometrically sound instruments that have content validity. [...] This study reports three phases of the development and testing of such a measure: QOLLTI-F, Quality of Life in Life Threatening Illness - Family Carer Version, simultaneously in English and French. [...] QOLLTI-F is unique in that in measuring one person’s QOL (the carer’s) it includes their perception of the condition of another (the patient). This attests to the close relationship between the two. It is also unique in that its content is derived from a qualitative study asking carers what is important to their own QOL, rather than focusing on the changes or burdens related to caregiving. QOLLTI-F also has the advantage of being briefer than other carer QOL measures. It contains measures of seven different domains that are determinants of carer QOL, in addition to a summary score. All these measures are valid, reliable and responsive to change in QOL. » (p. 755)