Parents’ Perspectives on The Quality of Life of Adolescents With Cerebral Palsy: Trajectory, Choices And Hope
Référence bibliographique 
Shikako-Thomas, Keiko, Bogossian, Aline, Lach, Lucyna M., Shevell, Michael et Majnemer, Annette. 2013. «Parents’ Perspectives on The Quality of Life of Adolescents With Cerebral Palsy: Trajectory, Choices And Hope ». Disability and Rehabilitation, vol. 35, no 25, p. 2113-2122.
Intentions : «The present study aims at understanding the parents’ perspectives of their adolescents’ QoL [quality of life] in order to expand on the insights gained from the adolescents. Specifically, we wanted to understand how parents of adolescents with CP [cerebral palsy] perceive their child’s QoL and what aspects relating to the child, the child’s environment, and the disability may contribute to their perception of their adolescent’s QoL.» (p. 2114)
Échantillon/Matériau : L’étude est basée sur la participation de 16 adolescents montréalais (12 garçons et 4 filles) atteints de paralysie cérébrale de 14 de leurs parents (12 mères, 1 belle-mère, 1 père).
Instruments : Guide d’entretien directif
Type de traitement des données : Analyse de contenu
«Parents of adolescents with CP who participated in this study constructed the QoL as a complex interaction of intrinsic and extrinsic aspects threaded by processes related to the trajectory of their child developing with a disability in the transition from childhood to adolescence and from adolescence to adulthood. These processes were seen as being framed by hope and choices. From the parents’ perspective, the interaction of these intervening factors along with contextual and adolescent-related aspects, composed the transitional experience of well-being for adolescents with CP. Adolescents’ and parents’ previous and current experiences and ability to foresee both subjectively and objectively the next steps to a happy life were considered essential for an overall sense of adolescent well-being.» (p. 2020)
Health Among Caregivers of Children with Health Problems: Findings from a Canadian Population-based Study
Référence bibliographique 
Brehaut, Jamie C., Kohen, Dafna E., Garner, Rochelle E., Miller, Anton R., Lach, Lucyna M., Klassen, Anne F. et Rosenbaum, Peter L. 2009. «Health Among Caregivers of Children with Health Problems: Findings from a Canadian Population-based Study ». American Journal of Public Health, vol. 99, no 7, p. 1254-1262.
Intentions : « We used population-based data to test the hypothesis that the health of caregivers of children with health problems would be significantly poorer than that of caregivers of healthy children, even after we controlled for relevant covariates. » (p. 1)
Échantillon/Matériau : « Data for this study were drawn from the National Longitudinal Survey of Children and Youth (NLSCY), a long-term study of the physical and social development of Canadian children conducted jointly by Statistics Canada and Human Resources and Social Development Canada. » (p. 1) « The sample for our study was limited to children aged 4 to 11 years (n=13790) to ensure consistency of health outcome items, since items differed for younger children. » (p. 2)
Instruments : Questionnaire
Type de traitement des données : Analyse statistique
« The results of this study suggest that the health of caregivers of children with health problems is significantly poorer than the health of caregivers of healthy children. After we controlled for relevant family, caregiver, and child factors, caregivers of children with health problems had substantially greater odds of reporting chronic conditions, activity limitations, poor general health, and symptoms of depression than did caregivers of healthy children. This work contributes to the existing literature by having used large-scale, population based data and a broad spectrum of child health problems to ensure generalizability to a wide range of caregiving situations; by broadening our knowledge of caregivers’ physical health issues; and by isolating the independent effect of caring for a child with a health problem on caregiver health, after controlling for relevant covariates. » (p. 3)
A Review of Current Trends, Debates and Intervention Models in Family Therapy Circa 2005
Référence bibliographique 
Keefler, Joan, Lach, Lucyna M. et Duhamel, Fabie. 2005. «A Review of Current Trends, Debates and Intervention Models in Family Therapy Circa 2005 ». Intervention, no 123, p. 6-16.
Intentions : « The authors have chosen to review, in more detail, three intervention models of family therapy, functionnal family therapy, multidimensional family therapy and the illness beliefs model. » (p. 7)
Échantillon/Matériau : « [Functionnal family therapy and multidimentsional family therapy] were chosen as they are the family-based models for the treatment of conduct disorders in adolescence that have been the subject of the most rigorous testing in recent years. They were among the three intervention programs that met the criteria for effectiveness in reducing criminal behaviour in youth chosen from 500 programs reviewed in 2001 by the Blueprints for Violence Prevention report in the United States (Mihalic, Irwin, Elliott, Fagan, & Hansen, 2001). The illness beliefs evaluated in Canada, was selected as representative of post-modern therapies and interventions for families living with the illness. » (p. 7)
Type de traitement des données : Recension
« Description, result findings and implications of practice for three models of family therapy: Multisystemic therapy, Functional family therapy, and illness beliefs model. [...] This review of the literature is designed to bring to the notice of clinicians practicing family therapy some of the curent trends, the latest empirical evidence and current debates in the field. In general, the field of relationship therapy has been noted for the paucity of research supporting the efficacy of its practice. This is not a surprising state of affairs since most (80%) MFT practitioners work in clinical rather than research settings (Sprenkle & Piercy, 2005). They appear to prefer clinical work to the painstaking, tedious and often isolating climate inhabited by the researcher. Research findings have little impact on practice and this gap between research and practice has been well documented (Guterman, 2002; Johnson, 2003; Pinsof & Wynne, 2000; Sexton, Alexander, & Mease, 2004). We hope that this review will help bridge this gap between the researcher and clinician, and help inform practice. » (p. 6)