Study on the Transition of Adolescents with Neurological Disorders (STAND)

Study on the Transition of Adolescents with Neurological Disorders (STAND)

Study on the Transition of Adolescents with Neurological Disorders (STAND)

Study on the Transition of Adolescents with Neurological Disorders (STAND)s

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Référence bibliographique [11685]

Oskoui, Maryam. 2010. «Study on the Transition of Adolescents with Neurological Disorders (STAND)». Mémoire de maîtrise, Montréal, Université McGill, Département d’épidémiologie, biostatistique et santé au travail.

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Fiche synthèse

1. Objectifs


Intentions :
«Les enfants souffrant de troubles neurologiques chroniques vivent de plus en plus jusqu’à l’âge adulte. Nos objectifs étaient de décrire, du point de vue du neurologue au Québec, la pratique courante et les opinions à l’égard de la transition de ces adolescents des soins pédiatriques aux soins adultes, incluant les barrières au processus, si les patients éprouvent un carence en soins durant cette période, et si les neurologues pour adultes ont la formation requise pour prendre soin de ces patients.» (p. 5)

2. Méthode


Échantillon/Matériau :
«Of the 24 studies for which full-text articles were retrieved, 20 were included and four were rejected. [...] 14 were observational QUAN[quantitative] studies, 3 MM[mixed methods] studies, and 3 QUAL[qualitative] studies.» (p. 19)

Type de traitement des données :
Réflexion critique

3. Résumé


«This is the first study to describe the current views and practices of neurologists in transition care. We found that most pediatric neurologists frequently transfer adolescents with traditionally pediatric onset chronic neurological disorders into the adult health care milieu, with many challenges. Patients and family alike are ill-prepared for this change and often unaware how to navigate the adult health care system. Patients may lack information regarding their condition or medications and the self-management skills needed as adults. Pediatric neurologists similarly struggle to identify a suitable and willing adult neurologist or the appropriate multidisciplinary care setting for their patients. Transfer summaries, although usually provided, often lack detailed information according to adult neurologists, with frequent lack of communication both prior and after the transfer of care. Adult neurologists also may lack training or experience in managing this patient population. Many neurologists believe that patients experience a gap in care during this period. Furthermore, late adolescence is a time of uncertainty for the patient, who may experience adverse health and psycho-social consequences if developmentally appropriate and timely guidance is not provided. Perceived parental protectiveness and reluctance to transfer care to an adult setting may not be inappropriate in light of the limitations outlined by neurologists.» (p. 52)